Living With Food Allergy

Recent Data Highlights From the Participants of the FARE Patient Registry®

1

Who we are

<1
>80
to
Youngest
Oldest
Adults
Under 18
2

When we were diagnosed

3

Our Food Allergies

How Many of Us Are Allergic to Top 9 Allergens

Many Of Us Are Allergic To Foods Beyond The Top 9

How Many Food Allergies We Have

1
Allergy
2+
Allergies
2-4
Allergies

Number Of Foods We Are Allergic To

Our Most Common Food Allergy

4

Our food allergy reactions

Location of Our Last Reported Food Allergy Reaction

Our Previous ER Visits to Treat Reactions

None
41%
1
24%
2+
35%

Many of Us Have Food Allergy-Related Conditions

Eczema
(Atopic Dermatitis)
Asthma
Hay Fever
(Allergic Rhinitis)
Data were reported by the participants of the FARE Patient Registry as of April 2020 and are subject to change.

FARE patient registry data at work

Recent Examples of Research Focus

Shedding Light on Food Allergy-Related Mental Health Concerns “Mental Health Treatment Experiences Among Patients with Food Allergy and Their Caregivers” 2 According to this study, 71% of patients experienced food allergy-related mental health concerns. The most common one cited was anxiety about living with food allergy (64%) and anxiety after an allergic reaction (55%). “Allergists need to be proactive and anticipate that their food allergy families will be stressed and at times anxious, so that families don’t need to be the ones to reach out. This means allergists should ask families how they are doing, how they are coping, what stresses them, and if they need it provide them with handouts about mental health and referrals to mental health professionals.” —Linda Herbert (PhD), lead investigator
50%

Reported food-allergy-related-mental health concerns (worry, stress, anxiety or sadness, etc) carry over to non-food allergy-related problems

13%

Reported having collaborated with their allergist/pediatrician about food allergy related mental health concerns
How Reporting About Reactions at Restaurants Can Lead to Change “Epidemiology Of Food Allergic Reactions In Restaurants” 3 In this study, led by Dr. Roxanne Oriel, dining out was the second most common location for reported food allergic reactions.

The most common food allergens that caused an allergic reaction for both children and adults while dining out were peanut, tree nuts, and milk. Shellfish were also a common food trigger in adults while dining out.

Current knowledge of food allergic reactions in restaurants is essential before advocating for policies relating to food allergen labeling on restaurant menus and mandatory training for restaurant staff. This data will inform families and physicians on best practices for dining out at restaurants with the goal of improving the quality of life of food allergic individuals.

Participant = person with diagnosed food allergies

Source

1 FARE Patient Registry, all data, May 2017-April 29, 2020

2 Mental Health Treatment Experiences Among Patients with Food allergy and Their Caregivers, October 2019, Linda Herbert, PhD, Luis Garcia, Mary Jane Marchisotto, Brian Vickery, MD, FARE Patient Registry, December 2018 to June 2019, N=620;
https://patients.eaaci.org/the-goldilocks-principle-when-is-the-level-of-food-allergy-anxiety-just-right-and-how-to-cope/

3 Epidemiology Of Food Allergic Reactions In Restaurants, February 2020: Roxanne Oriel, MD, Hemant Sharma, MD MHS FAAAAI, Thomas B. Casale, MD, Julie Wang, MD FAAAAI, FARE Patient Registry September 2017 to September 2019, N=597

FARE Patient Registry FARE