Created for individuals and families living with food allergies, the FARE Patient Registry harnesses the power of patient information to speed the search for new treatments and inform life-changing improvements in patient care.
No one understands food allergies better than those living with them every day. Your unique experience can help researchers broaden our understanding and answer questions that will lead to important breakthroughs.
The FARE Registry is the largest of its kind, with more than 11,000 participants like you contributing vital, confidential information to support ground-breaking research collaborations that link FARE Patient Registry researchers at the 46 food allergy Centers of Distinction in the FARE Clinical Network and other institutions.
Register in five minutes, then complete the food allergy history and other registry surveys on any device, where and when you choose. Your data is stored and maintained in a secure, password-protected database ensuring the privacy, security, and confidentiality of all personal information.
The FARE Patient Registry is made possible through the generous support of our donors including anonymous private philanthropy, DBV Technologies, Genentech and Sanofi US Services.
Every disease community should have a common, accessible patient registry.
We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.
But registries are hard to maintain.
Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.
Patient Crossroads is here to fix all of that.
Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.
