For Healthcare Providers

The FARE Patient Registry is a tool for food allergy patients and researchers that collects data on epidemiology, demographics, natural history, treatment variations and outcomes, prognostic factors, and the safety and quality of life of patients with food allergy. By providing insight into the incidence and social impact of food allergy, the Registry supports development of the knowledge, tools and resources needed to quickly advance clinical research and build a pipeline for new therapies.

The FARE Patient Registry is designed so that patients can register on their own and directly provide information, especially on outcomes and quality of life. Healthcare providers play an important role in Registry recruitment by helping patients understand how their choice to enroll in the Registry increases the Registry’s value to research. The secure, confidential, privacy-protected Registry collects information about patient demographics, symptoms, reactions and reaction management, as well as changes in these parameters over time. The Registry currently collects self-reported data. Efforts to collect additional types of data, including clinical data, are being explored.

What is the value of the FARE Patient Registry?

The FARE Patient Registry is the largest food allergy registry capturing the disease patterns of children and adults. It will help researchers better understand food allergy and its impact and will reveal opportunities to improve the care food allergy patients receive. Data from the FARE Patient Registry is also used to support FARE's education and advocacy initiatives. A biorepository of DNA, RNA, and blood samples from Registry participants, linked to the next iteration of the Registry, could dramatically accelerate discovery of genetic risk factors and biomarkers that are key to understanding food allergy. As participants are followed over time, the biorepository will help researchers describe the natural history of food allergy and discover factors critical for the design of clinical trials and stratification of patients. Since food allergy is a complex genetic disease with multiple genetic risk factors and triggers, large samples of patients (thousands per allergen) will likely be needed to enable robust discovery. The Registry will:

  • Provide realistic clinical and demographic information about patients
  • Inform treatment approaches, best practices and outcomes
  • Offer information about target populations for therapeutic interventions

How will the FARE Patient Registry benefit your patients?

By participating in the FARE Patient Registry, your patients can make a difference in their own lives and in the lives of millions of individuals and families who, like them, are suffering from food allergies. Reasons to participate include:

  • The opportunity to contribute directly to the search for new treatments and a cure
  • The experience of being part of a powerful community helping to inform groundbreaking research
  • The possibility of being connected with investigators at institutions nationwide to participate in food allergy clinical trials
  • The ability to use the FARE Patient Registry for family food allergy medical record-keeping, helping to organize food allergy medical information and track food allergy reactions

Who is eligible to join the FARE Patient Registry?

Individuals are eligible to join the Registry if they or their child/dependent has a physician-diagnosed or well-documented history of food allergy, and can provide informed medical consent.

Food-allergic individuals under age 18 are welcome to join the Registry. To participate, the minor patient must give their assent, and the patient’s parent or guardian must provide consent.

At this time, the FARE Patient Registry is focused on participation from U.S. residents only.

What does FARE Patient Registry participation involve?

Joining the Registry takes a small commitment of time, but making a difference is free and simple.

  • Enroll in the Registry. Creating a confidential profile takes 5-10 minutes. Adult patients over 18 years of age and parents/guardians of food-allergic minors will be asked to read and electronically sign a consent form. In addition, food-allergic participants under age 18 must complete an assent form agreeing to participate.
  • Complete online surveys. Patients will share their personal experiences as a food allergy patient or caregiver by taking surveys that can be completed in 5-10 minutes on any smart device or computer.
  • Share medical records. Participants can securely upload physician notes and test results to provide confirmation of diagnosis. They can also submit other relevant information such as symptoms, ongoing care and oral food challenges.
  • Update reactions. Each time the patient or dependent has an allergic reaction, it's important to log this experience by retaking the Food Allergy Reactions survey.

Will patient information be kept confidential?

The FARE Patient Registry is firmly committed to maintaining the confidentiality of your patients’ personal information. When your patients submit information to the FARE Patient Registry, the data will be stored and maintained in a secure, password-protected database, assuring the privacy, security and confidentiality of all personal information as described in our Privacy Policy. Third parties will not be given access to any personally identifiable information, unless the patient specifically agrees to be contacted by them. The Registry complies with the Health Insurance Portability and Accountability Act (HIPAA), the Federal Information Security Management Act (FISMA), data and patient protection laws, and Institutional Review Board (IRB) standards.

If you'd like further information or free informational materials you can distribute to your patients, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..