For Healthcare Providers

The FARE Patient Registry is a data collection tool that provides a broad view of the natural history of food allergies, variations in treatment modalities and outcomes, factors that affect the prognosis, delivery and effectiveness of care, and the safety and quality of life of patients. The registry will provide insight into the incidence and social impact of food allergies that will further develop scientific understanding, tools, and resources necessary to advance clinical research rapidly and build a pipeline for new therapies.

The FARE Patient Registry is designed so that patients can register on their own and directly provide information, especially on outcomes and quality of life. However, healthcare providers will play an important role in bringing together patients with the registry. The registry will collect information about the patient, symptoms, the reaction, management and how these parameters will change over time. In the future, serological data such a serum and biopsies might be included.

 data description

What is the value of the FARE Patient Registry?

The FARE Patient Registry is the only food allergy registry established to capture the disease patterns of children and adults. It will provide information to clinicians to help improve the quality and safety of care they provide to patients. It will help identify if patients are receiving recommended treatments and can be used to compare how effective different treatments are for food allergic reactions.

The information from FARE's Patient Registry is also used to support FARE's initiatives on education, advocacy, policies and laws. A national food allergy patient registry and biorepository (a collection of DNA, RNA, and blood samples from each participant) could dramatically accelerate discovery of genetic risk factors and environmental triggers of food allergy. If the participants are followed over time, it can help to describe the natural history of food allergy and to discover serum biomarkers, critical for the design of clinical trials and stratification of patients, respectively. As food allergy is a complex genetic disease with multiple genetic risk factors and environmental triggers, large samples of patients (thousands per allergen) will likely be needed to enable robust discovery.

  • Provides realistic clinical and demographic information about patients
  • Informs treatment approaches, best practices and outcomes
  • Offers information about target populations for therapeutic interventions
  • Allows patients better access to clinical trials

Benefits to your patients

By participating in The FARE Patient Registry, patients can make a difference in the lives of millions of individuals with food allergies and their families. There are exciting studies in development at major medical centers nationwide. Your patients will be able to:

  • Create a personal repository of food allergy reaction data
  • Contribute directly to the search for new treatments and a cure
  • Potentially benefit from promising new treatments before they are widely available
  • Access medical care from a team of experts in the field
  • Access interactive information and data from the registry
  • Sign-up to connect with research studies and clinical trials

Who is eligible to join?

To be eligible to join, participant must:

  • Be an adult who is at least 18 years old or a parent or legal guardian of a child with a diagnosed food allergy who has the authority to make medical decisions
  • Have a confirmed diagnosis of a food allergy
  • Have an active disease or a tolerance developed to a previous allergen
  • Be able to provide online informed consent

FARE is here to help you help your patients. For more information, visit: Resources for Healthcare Providers